National Resources

The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.

The mission of the National Down Syndrome Congress is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.

The mission of the Global Down Syndrome Foundation is to significantly improve the lives of people with Down syndrome through research, medical care, education and advocacy.

The National Down Syndrome Society (NDSS) and LuMind IDSC joined forces to advance the rights, health, and well-being of individuals with Down syndrome. This unified organization will drive progress across multiple fronts, from accelerating scientific research, improving access to quality healthcare, shaping inclusive public policy, and shifting public perception through increased awareness and education. NDSS will be adding a research pillar to its core programmatic work. More information about current research can be found at this link.

DS-Connect™: The Down Syndrome Registry, is the new Down syndrome registry hosted by the National Institutes of Health (NIH) and the Down Syndrome Consortium. The goals of DS-Connect are to gain a better understanding of Down syndrome, to learn more about the health issues associated with Down syndrome, to develop new treatments for Down syndrome and to improve care for people with Down syndrome.

The mission of the Down Syndrome Diagnosis Network is to connect, support, and provide accurate information to parents - and the medical professionals who serve them - from the time of diagnosis through age 3 while fostering the opportunity for lifelong connections.