BEGIN:VCALENDAR VERSION:2.0 PRODID:-//www.dsamidlands.org//NONSGML kigkonsult.se iCalcreator 2.30.10// CALSCALE:GREGORIAN METHOD:PUBLISH UID:60f702e9-fca6-4e3c-832d-c03477e030fe X-WR-CALDESC:The Down Syndrome Education Series (DSES) is a monthly educati onal seminar for families of children with Down syndrome\, designed to con nect parents with information that will positively impact the education an d well-being of their child.\n\nIn this presentation\, Dr. Alyssa Siegel\, Medical Director of the Children’s Hospital of Philadelphia’s Transition to Adulthood Comprehensive Care\, will address the common challenges that families face during this exciting but daunting time. In conversation with Stephanie Pratico\, family-centered care educator and advocate\, and pare nt of two young adults with Down syndrome\, this experienced team will del ineate planning strategies and solutions that will allow families to fly r ather than fall as they approach the transition to adulthood. A PTI repres entative will be available to help answer questions as well.\n\nDr. Alyssa Siegel is the Clinical Director of NJ Transition to Adult Coordinated Car e at the Children’s Hospital of Philadelphia\, a program designed to help families of patients with intellectual and developmental disabilities navi gate the challenging transition from pediatric to adult care. Dr. Siegel has a special interest in working with families of individuals with Down s yndrome and has been an invited speaker at regional\, national and interna tional conferences\, including the National Down Syndrome Society (2020)\, National Down Syndrome Congress (2016\, 2017\, 2018)\, the Canadian Down Syndrome Society Conference (2016\, 2017)\, and the World Down Syndrome Co ngress (2018). She has developed written and on-line resources\, includin g the CHOP Trisomy 21 Toolkit for Transitioning to Adult Medical Care and the safety series\, Keeping Your Special Needs Child Safe. Dr. Siegel is a member of the Down Syndrome Medical Interest Group\, a Fellow of the Amer ican Academy of Pediatrics\, and Clinical Assistant Professor of Pediatric s\, Perelman School of Medicine at the University of Pennsylvania. \n\n\n \n\n\nStephanie A. Pratico is the mother of two young adults with Down syn drome and complex medical needs\, John and Sara. In addition\, she was co- guardian of her 70-year-old Aunt Cathy with autism. Lead by personal exper ience\, she has been an advocate for over twenty years consistently workin g to improve healthcare\, education and supports for individuals with deve lopmental disabilities. She has advocated alongside many organizations inc luding Special Olympics NJ\, (Children’s Hospital of Philadelphia) CHOP an d the Arc of New Jersey\, locally and nationally on various education\, he althcare\, and community issues which has included testifying at various c ommittee hearings.\n\nShe spearheaded and manages the new CHOP NJ Transiti on to Adult Comprehensive Care program (NJ TACC). This program was created specifically to support individuals with intellectual and developmental d isabilities and their families in NJ with the complexities of transitionin g vital medical\, community and support services into adulthood.\n\nShe is the founder of Valuable Partners\, LLC which is a consulting firm. In thi s role\, she works to educate healthcare professionals\, patients and fami lies on the practice of patient and family-centered care partnerships to e nhance care coordination and improve outcomes for complex patients. She is an experienced lecturer and educator within healthcare systems and medica l schools including The Children's Hospital of Philadelphia\, University o f Pennsylvania School of Nursing and Doctoring\, Arcadia University Geneti c Counseling Program\, Rutgers Robert Wood Johnson Medical School-The Bogg s Center on Developmental Disabilities\, Special Olympics New Jersey\, and a Mercer County Community College Distinguished Lecturer.\n\nIn addition\ , she is a graduate fellow of the LEND (Leadership Education in Neurodevel opmental Disabilities) Program at CHOP\, a member of the CHOP Family Advis ory Council and CHOP Family Faculty. Additionally\, she was a consultant t o Special Olympics New Jersey and previously managed their Healthy Athlete s program. Stephanie is a graduate and guest speaker of Partners in Policy making under the NJ Council on Developmental Disabilities (NJCDD) and serv ed as the Chairperson of the NJCDD from 2014 to 2017. X-WR-RELCALID:293e20a75a8e7a3199e008e1d5cf993c X-WR-TIMEZONE:America/Chicago BEGIN:VTIMEZONE TZID:America/Chicago BEGIN:STANDARD TZNAME:CST DTSTART:20201101T020000 TZOFFSETFROM:-0500 TZOFFSETTO:-0600 RDATE:20211107T020000 RDATE:20221106T020000 END:STANDARD BEGIN:DAYLIGHT TZNAME:CDT DTSTART:20210314T020000 TZOFFSETFROM:-0600 TZOFFSETTO:-0500 RDATE:20220313T020000 END:DAYLIGHT END:VTIMEZONE BEGIN:VEVENT UID:59dfa53d-3c0c-414f-8706-9f95f193897f DTSTAMP:20260429T012541Z DESCRIPTION:The Down Syndrome Education Series (DSES) is a monthly educatio nal seminar for families of children with Down syndrome\, designed to conn ect parents with information that will positively impact the education and well-being of their child.\n\nIn this presentation\, Dr. Alyssa Siegel\, Medical Director of the Children’s Hospital of Philadelphia’s Transition t o Adulthood Comprehensive Care\, will address the common challenges that f amilies face during this exciting but daunting time. In conversation with Stephanie Pratico\, family-centered care educator and advocate\, and paren t of two young adults with Down syndrome\, this experienced team will deli neate planning strategies and solutions that will allow families to fly ra ther than fall as they approach the transition to adulthood. A PTI represe ntative will be available to help answer questions as well.\n\nDr. Alyssa Siegel is the Clinical Director of NJ Transition to Adult Coordinated Care at the Children’s Hospital of Philadelphia\, a program designed to help f amilies of patients with intellectual and developmental disabilities navig ate the challenging transition from pediatric to adult care. Dr. Siegel h as a special interest in working with families of individuals with Down sy ndrome and has been an invited speaker at regional\, national and internat ional conferences\, including the National Down Syndrome Society (2020)\, National Down Syndrome Congress (2016\, 2017\, 2018)\, the Canadian Down S yndrome Society Conference (2016\, 2017)\, and the World Down Syndrome Con gress (2018). She has developed written and on-line resources\, including the CHOP Trisomy 21 Toolkit for Transitioning to Adult Medical Care and t he safety series\, Keeping Your Special Needs Child Safe. Dr. Siegel is a member of the Down Syndrome Medical Interest Group\, a Fellow of the Ameri can Academy of Pediatrics\, and Clinical Assistant Professor of Pediatrics \, Perelman School of Medicine at the University of Pennsylvania. \n\n\n \n\n\nStephanie A. Pratico is the mother of two young adults with Down syn drome and complex medical needs\, John and Sara. In addition\, she was co- guardian of her 70-year-old Aunt Cathy with autism. Lead by personal exper ience\, she has been an advocate for over twenty years consistently workin g to improve healthcare\, education and supports for individuals with deve lopmental disabilities. She has advocated alongside many organizations inc luding Special Olympics NJ\, (Children’s Hospital of Philadelphia) CHOP an d the Arc of New Jersey\, locally and nationally on various education\, he althcare\, and community issues which has included testifying at various c ommittee hearings.\n\nShe spearheaded and manages the new CHOP NJ Transiti on to Adult Comprehensive Care program (NJ TACC). This program was created specifically to support individuals with intellectual and developmental d isabilities and their families in NJ with the complexities of transitionin g vital medical\, community and support services into adulthood.\n\nShe is the founder of Valuable Partners\, LLC which is a consulting firm. In thi s role\, she works to educate healthcare professionals\, patients and fami lies on the practice of patient and family-centered care partnerships to e nhance care coordination and improve outcomes for complex patients. She is an experienced lecturer and educator within healthcare systems and medica l schools including The Children's Hospital of Philadelphia\, University o f Pennsylvania School of Nursing and Doctoring\, Arcadia University Geneti c Counseling Program\, Rutgers Robert Wood Johnson Medical School-The Bogg s Center on Developmental Disabilities\, Special Olympics New Jersey\, and a Mercer County Community College Distinguished Lecturer.\n\nIn addition\ , she is a graduate fellow of the LEND (Leadership Education in Neurodevel opmental Disabilities) Program at CHOP\, a member of the CHOP Family Advis ory Council and CHOP Family Faculty. Additionally\, she was a consultant t o Special Olympics New Jersey and previously managed their Healthy Athlete s program. Stephanie is a graduate and guest speaker of Partners in Policy making under the NJ Council on Developmental Disabilities (NJCDD) and serv ed as the Chairperson of the NJCDD from 2014 to 2017. DTSTART;TZID=America/Chicago:20210608T183000 DTEND;TZID=America/Chicago:20210608T203000 LOCATION:https://secure.lglforms.com/form_engine/s/C0_1bVxrYaPHziHlixCKmw SUMMARY:June DSES - Transitions END:VEVENT END:VCALENDAR