The Down Syndrome Education Series (DSES) is a monthly educational seminar for families of children with Down syndrome, designed to connect parents with information that will positively impact the education and well-being of their child.
"Global Medical Care Guidelines for Adults with Down syndrome"
with Bryn Gelaro, Global Down Syndrome Foundation
& Dr. Moya Peterson, PhD APRN
The much-anticipated GLOBAL Medical Care Guidelines for Adults with Down Syndrome are now published and available! Learn about the first set of evidence-based, updated recommendations for families to share with their medical providers. This first version of the Global Guideline covers 9 topic areas deemed critically important for the health and well-being of adults with Down syndrome, resulting in 14 recommendation statements and 4 statements of good practice. This presentation will cover the guideline creation process, tips for ways families can follow the recommendations, and the patient toolkits created to accompany the guidelines. We will discuss how families can access the guidelines and how/why they may differ from standard care. We will also outline the future research needed to build upon the existing evidence base and map out a plan for what will be covered in the second version of the Global Guideline, expected over the next 5 years.