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DSA is a resource center for your patients and families with a diagnosis of Down syndrome. We provide support to health care providers through online resources, patient education materials, and inservice presentations. Presentations can be tailored to meet the needs of health care professionals, students and staff. Email our Medical Outreach Chair for materials or to schedule a presentation for your practice or for Grand Rounds.

  • A physician’s guide to discussing Down syndrome with parents, including separate scenarios for prenatal and postnatal both with confirmed diagnosis or suspicion of DS.

  • The Down Syndrome Health Care Guidelines follow an individual’s development from birth through adulthood and provide information about potential health concerns at each stage.

  • People with Down syndrome are at increased risk for certain health problems compared to the general population. This section offers information about these health issues.

  • Professional Portal: Researchers, clinicians and other professionals can access de-identified aggregate data in DS-Connect® to identify target populations for study or trial planning or recruitment. You can also contact the DS-Connect® Coordinator to communicate with registrants on your behalf regarding potential candidacy for clinical trials and research studies.

  • Each month, NDSS provides a free webinar to anyone who is interested in learning more about Down syndrome and related topics such as health, education, research and family life.

  • Dr. Skotko has dedicated his professional energies toward children with cognitive and development disabilities. He offers several webinars regarding healthcare updates, sibling issues, clinical metabolism and diagnosis of DS.

  • From Disability Is Natural, how to put the person before the diagnosis.

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